Welcome to Effed With Being Effed Over, a series about disabled sexual life under late-stage capitalism with a dose of everyday anarchism.
Thank you for your interest in disability, sexuality, and everyday anarchism. It means a great deal to me to have your support. Feel free to reply to the emails or comment with an aspect of disabled sexual life that you would be interested in learning more about in this series.
While more people are beginning to frankly discuss disability and sexuality, few to none are doing so through the lens of anarchist theory. But this little newsletter wants to become more than theory, which is why its focus is on ways to incorporate practical, everyday anarchism into our lives.
I’d love to broaden the conversation on disability and anarchism, so if you’d like to guest post, collaborate, or just talk about ways anarchism is possible for disabled people, drop me a line.
P.S. Blah blah blah; share, tell your friends, subscribe, et cetera. All posts are free.
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Please say hello in the comments and I will be in touch with you as soon as time allows.
What does “as soon as as time allows” mean?
I am just one person and do not have an assistant, volunteers, interns, or other staff. Due to everything that life entails, I receive a large amount of communication on a daily basis. As I am disabled, I live on crip time.
Being on crip time means I must prioritize my health. This sometimes means that there will be messages I am unable to reply to at all, and other messages may take weeks to receive a response. Time-frame and response are all dependent upon my capacity as my available time, energy, and cognition are all limited by my activities of daily living as an impoverished disabled person in a world that is neither friendly, welcoming, nor accessible to poverty and disability.
Thank you for your understanding, patience, and gentle acceptance of my boundaries, limitations, and needs.
About Caz Killjoy
Who am I? / What do I do?
That's a really tough question for me to answer these days. If we are defined by our work (which we aren't, but capitalism really, really wants us to believe the opposite), then I used to be a cripsex agitator, disability activist, educator, patient advocate, and writer who focused on topics that make most people uncomfortable: advocacy and accountability; sex and kink; pain, disability, and illness; death and poverty; accessibility and technological security.
I'm on medical sabbatical during 2023 to have two neurosurgeries (those are now done) and two back surgeries (those are still to come); you can learn more about that here if you'd like.
If I can't connect with you now, I hope to do so in 2024, when I'll have hopefully figured out who and what I want to be when I grow up.
Though I'm on sabbatical, I can't seem to stop writing.
I have a chapter about preserving the stories of disabled sexuality in archival work coming out in a book by Litwin Books in late 2023.
I'm virtually presenting a paper on anarchism and disability ("A Better World is Possible for Disabled People") for the 18th Annual CAPPE Conference Radical Disability Politics – A Global Dialogue at the University of Brighton in September (as long as the staff strike at the university ends before then). I hope to turn the paper into a book, though as an edited collection (with multiple authors).
I have a couple of other writing tricks up my sleeve at the moment, but I can't talk about them just yet.
And of course, I have this new Substack account, as the hypergraphia begs to have a public outlet.
What else have I done? - The work edition.
I have participated with multiple radical leftist and feminist cooperatives, organizing groups, and conferences since 1999. Prior to 2023, my focus had been on accessibility and inclusion, particularly within the sexuality industries.
For more than a decade, I had assisted as peer support for disabled individuals, a consultant for nonprofits and solopreneurs, and an advocate for individuals in need regarding accessibility, disability awareness, supportive services, health insurance, vocational rehabilitation, economic stability, and diagnostic support.
As a writer and storyteller, I began “blogging” in the 1990’s, providing me with over twenty years of experience with professional over-sharing in the style of the chaos-to-quest narrative. Using a variety of monikers and platforms, I have written publicly and extensively on issues of sex, relationships, disability, and mental health since before I was old enough to know better. Over the last twenty years, I have appeared as an author, interviewee, or performer in multiple media formats relating to disability and/or sexuality.
From 2017-2022, I presented workshops and guest lectured to graduate and undergraduate students on subjects including sadomasochism in relation to chronic pain, sex and disability, kink and disability, and disability as a general topic. I also taught about accessibility, poverty, disability, and technology to wide audiences, from activists and organizers to sex workers and tantra practitioners to business-focused professionals.
In my spare time I advocated for technological rights / freedom and provide training to those interested in increasing their internet security.
But who am I, really? (Enter the identity labels.)
In Slavic, “Caz” means “the famous destroyer of peace,” but “Caz” is also an abbreviation of their first name, hence the name “Caz Killjoy” – which started out as a joke and now I’m stuck with it.
I’m a white, genderqueer, queer person who practices non-monogamy as a relationship anarchist. I am also an abolitionist, an anarchist, an atheist, and an anti-Zionist; lumpen-precariat; formerly unhoused; a former sex worker; a proud GED recipient; and multiply disabled. To paraphrase, my disabilities are the least interesting thing about me.
To learn more or get in touch, find me at ConnectWithCaz.com.
To find out more about the company that provides the tech for this newsletter, visit Substack.com.